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Soon To Be Deaf: How to Prepare, Advice, Expectations

If your hearing is getting worse, and you are concerned about life once you go deaf, then this is the right article for you. Click here to read more!

Author:
Colton Jannusch
Soon To Be Deaf: How to Prepare, Advice, Expectations

Living with the prospect of becoming deaf can bring about a mix of emotions, uncertainties, and questions. However, with the right preparation, support, and resources, the journey toward embracing deafness can be empowering and fulfilling. In this article, we will explore various aspects of preparing for deafness, define the term “soon-to-be deaf,” provide advice, and set realistic expectations to help individuals navigate this transition with confidence.

We believe individuals can thrive in their new deaf-centered reality. Here’s how:

1. Understanding the Term “Soon-to-be Deaf”

Defining the term "soon-to-be deaf" is essential to gain clarity and prepare for the challenges ahead. This term refers to individuals who are anticipating the onset of deafness or experiencing progressive hearing loss, recognizing the potential impact on their daily lives and communication abilities. By understanding this concept, soon-to-be deaf individuals can better prepare themselves and begin the process of adaptation by seeking out appropriate support.

2. Recognizing the Signs of Going Deaf

It is important to recognize the signs of going deaf so it can be addressed as early as possible to mitigate any impact on life going forward. For those who are soon-to-be deaf, the symptoms may include: 

  • Muffling of speech and other sounds.
  • Trouble understanding words, especially when in a crowd or a noisy place.
  • Trouble hearing the letters of the alphabet that aren't vowels.
  • Often asking others to speak more slowly, clearly, and loudly.
  • Needing to turn up the volume of the television or radio.

Tools such as the WHO “hearWHO” app and other technology-based solutions make it possible to screen for ear diseases and hearing loss with limited training and resources.

3. Understanding Medical Advice and Recommendations:

Medical professionals offers guidance on managing hearing loss.
Medical professionals offers guidance on managing hearing loss.

Medical professionals specializing in audiology can offer guidance on managing hearing loss and suggest appropriate interventions and resources. See a local audiologist in your area today. You could be fitted with hearing aids to maximize your auditory experiences. By understanding medical advice, treatment options, and lifestyle adjustments, soon-to-be deaf individuals can make informed decisions about their hearing health.

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4. Understanding the Impact on Work and Education Opportunities:

Your upcoming deafness may bring changes to work and educational settings. It is essential to understand one's rights, explore workplace accommodations, and communicate effectively with employers and educators to ensure equal opportunities for your success. Engaging with disability support services and exploring assistive technologies can further enhance professional and educational experiences.

5. Benefits and Resources for Soon-to-be Deaf Individuals:

Young family preparing for the journey of deafness.
Young family preparing for the journey of deafness.

Once you know you are going deaf, prepare for the journey of deafness by gathering knowledge, building a support network (more on this later), and accessing resources.

These resources can include financial assistance, vocational training, communication devices, and counseling services. Exploring these resources can significantly enhance one's quality of life and facilitate a smoother transition. Governmental and non-profit organizations also offer a range of benefits and assistance programs specifically designed to support individuals with hearing loss. The Association of Late Deafened Adults (ALDA) can also be a great resource. 

By proactively seeking information and reaching out to organizations, clubs, and professionals specializing in hearing loss, you can better equip yourself for the journey. 

6. Accessing Social Services for the Deaf and Hard of Hearing:

Social services catered to the deaf and hard of hearing community can provide a wealth of support, including access to sign language interpreters, captioning services, and assistive technologies. The use of hearing assistive technology, and services such as frequency modulation and loop systems, alerting devices, telecommunication devices and apps (such as Nagish), captioning services and sign language interpretation, can further improve access to communication and education for people with hearing loss.  

By engaging with these services, individuals who are becoming deaf can overcome communication barriers and actively participate in various aspects of life.

7. Joining Supportive Groups and Communities:

A woman getting help and guidance for soon-to-be-deaf situation.
A woman getting help and guidance for soon-to-be-deaf situation.

Connecting with support groups and communities can be immensely beneficial for soon-to-be deaf individuals. These communities provide a safe space to share common experiences, seek advice, and find encouragement from others who have navigated a similar journey. Mutual support and shared experiences can help ease the emotional and practical challenges associated with becoming deaf and help you cope with the transition. Connecting with others who are going through a similar experience can remind you that you are not alone in this. 

8. Communicating with Family, Friends, and Colleagues

Effectively communicating your soon-to-be deaf status to your loved ones is a vital step in embracing deafness. By sharing this information openly and honestly, you build understanding, foster empathy, and establish a support network that will be invaluable throughout your transition. Engaging in open conversations paves the way for emotional and practical support, strengthening relationships and ensuring that you have a strong network of loved ones by your side as you navigate your deaf identity.

They can assist you in finding resources, learning sign language, or adjusting living and working environments to accommodate your listening needs. They can educate themselves with your support about hearing loss and its impact on their communication with you. 

9. What is “Deaf Gain”?

For some, becoming deaf means that they gain exposure to the deaf community, should one choose to engage. For many who are deaf, this is described as a “Deaf Gain”.  There is joy in welcoming a Deaf identity. A contemporary and vibrant Deaf culture is found within Deaf communities. 

The worst thing you can do is deny yourself a comfortable hearing experience by trying to pass off as a fully functioning hearing person. Understanding that this is a permanent part of your future identity is pivotal in ensuring that you come to terms with the journey and secure the best accommodations you will eventually need. 

10. Strategies for Effective Communication:

Lastly, developing effective communication strategies is paramount during the transition to deafness. This encompasses exploring alternative communication methods, such as sign language or assistive technologies, and honing skills for effective interaction in diverse social settings. By embracing different communication modalities, soon-to-be deaf individuals can maintain meaningful connections with others.

Conclusion

Young man with hearing aid.
Young man with hearing aid.

While the prospect of becoming deaf may initially seem daunting and challenging, it is important to remember that there is a wealth of information and resources available. By preparing in advance, seeking advice, and joining supportive communities, you can embrace your upcoming deafness with confidence, overcome challenges, and discover new people and opportunities. The journey toward deafness can be a transformative one, and we hope this article will help in some small way!

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Colton Jannusch

A passionate and dedicated English teacher who creates an inclusive and engaging learning environment, inspiring students to develop their language skills and cultivate a lifelong love for literature.

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Soon To Be Deaf: How to Prepare, Advice, Expectations

Key Findings

  • Workplace Impact: 62% of Deaf and 66% of Hard-of-Hearing individuals report that communication barriers hinder career mobility.
  • Healthcare Challenges: 62% of Deaf and 66% of Hard-of-Hearing individuals experience communication barriers in healthcare settings, contributing to delays in treatment.
  • Concerns About Emergency Communications: 20% of Deaf and 24.3% Hard-of-Hearing users also expressed serious concerns that communication barriers would prohibit them from contacting healthcare personnel in an emergency situation.
  • Independence Boost: Assistive technology nearly doubled rates of independence, with 60% of Deaf users and 63% of Hard-of-Hearing users reporting increased autonomy.
  • Emotional Strain: 55% of Deaf users and 83% of Hard-of-Hearing users reported emotional distress due to communication frustrations.
  • Social and Professional Opportunities: 46% of Deaf and 32.9% of Hard-of-Hearing users saw improved social and career prospects thanks to assistive technologies.

Empowering the Deaf and Hard-of-Hearing Through Technology: A New Era of Communication and Independence

At Nagish, we’ve seen firsthand just how much communication shapes daily life for Deaf and Hard-of-Hearing communities. Our recent survey highlights the significant barriers they face in the workplace, healthcare settings, and in their social lives. But it also sheds light on a powerful solution: assistive technology. The results of this survey reinforce our commitment to empowering these communities and remind us why our mission matters: with access to the right tools, independence grows, opportunities expand, and well-being improves.

We collected data through a comprehensive survey involving over 300 individuals who are Deaf or Hard-of-Hearing and currently use hearing assistive technology. The survey included 179 Deaf and 140 Hard-of-Hearing participants, with data collected in an inclusive and accessible manner to ensure that everyone could participate and share their experiences without barriers.Communication Barriers in the Workplace: Limiting Career Mobility

Communication challenges in the workplace remain one of the most significant hurdles for Deaf and Hard-of-Hearing individuals, preventing them from fully realizing their career potential. Assistive technology offers a solution by removing these barriers and expanding access to a broader range of job opportunities and career growth.

A majority of Deaf and Hard-of-Hearing participants reported that communication barriers affected their career decisions, making it harder to pursue job opportunities or advance in their careers.

Deaf Participants

Hard-of-Hearing participants

65% of Deaf users rely on assistance from hearing individuals at least once a week to communicate effectively, which can limit their ability to fully engage in dynamic work environments.

Communication Barriers in Healthcare: A Matter of Public Safety
Communication challenges are not just a workplace issue — they extend into healthcare settings, where they can directly impact individuals’ health outcomes. Accessible communication tools are essential for ensuring that Deaf and Hard-of-Hearing individuals can receive timely and accurate medical care, especially in emergency situations

Many Deaf and Hard-of-Hearing users face communication barriers in healthcare settings, which can lead to missed appointments, misunderstandings about medical treatments, and delayed care.

Deaf users:

62%

Hard of Hearing users:

66%

Some Deaf and Hard-of-Hearing users have concerns about reaching healthcare professionals in emergencies, highlighting serious public safety risks.

Deaf users

Hard-of-Hearing users

Empowering Independence Through Assistive Technology
One of the most encouraging findings from our survey is just how much independence is boosted with assistive technology. This improvement in independence is not just about doing things on their own; it’s about having the confidence and ability to engage fully in both professional and personal settings.

Assistive technology has significantly increased the independence of Deaf and Hard-of-Hearing users in managing daily tasks, showing clear improvements after adoption.

Deaf users

Hard-of-Hearing users

Expanding Social and Professional Opportunities
Beyond independence, assistive technology creates connection.By removing communication barriers that keep people from joining in socially or professionallyassistive technology allows users to engage more deeply in social activities and pursue career opportunities that were previously out of reach.

Assistive technology has helped Deaf and Hard-of-Hearing users expand their social networks and professional opportunities, enabling new connections and career growth.

Emotional and Psychological Impact: The Hidden Toll of Communication Barriers
People often overlook the emotional and psychological toll of communication , but they can have a profound impact on the mental well-being of Deaf and Hard-of-Hearing individuals. Assistive technology can help alleviate this emotional strain, empowering users to communicate more effectively and reducing the anxiety associated with relying on others for basic communication.

A significant number of Deaf and Hard-of-Hearing users experience frustration and anxiety when communicating with family and friends, leading to isolation and stress.

Deaf users

Hard-of-Hearing users

Why This Matters: A Call for Widespread Adoption of Assistive Technologies
The findings from our survey are clear: communication barriers continue to limit the lives of Deaf and Hard-of-Hearing individuals in many areas, from the workplace to healthcare to their social lives. What’s also clear to us is that the question isn’t whether assistive technology helps—it’s how quickly we can make this powerful solution universally available.. By making these tools more accessible, we can open up new opportunities for individuals to thrive in their careers, maintain better health, and lead more independent lives.
At Nagish, we are committed to advocating for the integration of assistive technologies in all aspects of life. Whether it’s in healthcare, the workplace, or social settings, these technologies have the potential to create a more inclusive society where Deaf and Hard-of-Hearing individuals can live fully empowered lives. 
Our hope is that these findings inspire not just awareness, but action. We hope this survey creates awareness and action in promoting accessibility and inclusion for these communities. Together, we can create a world where everyone, regardless of their hearing abilities, has equal access to opportunities and services.